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Remembering school life as a child unknown to be on the Asperger’s / autism spectrum

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Originally posted on the silent wave:
Two years ago, before the damage to my brain last year, I was a more prolific writer, fueled in no small part by the newness of the discovery that I was almost assuredly on the Asperger’s/autism spectrum, a theory that would be confirmed about 6 weeks later by a licensed professional. When one is found to be on the Asperger’s/autism spectrum later in life, much water has rushed under the bridge.  The later the discovery, the more “reframing” one finds themself (purposeful spelling) doing, in attempt to make order and sense of their life… Continue reading Remembering school life as a child unknown to be on the Asperger’s / autism spectrum

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How Neurodiverse are you? I know you’re curious…

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This is a visual representation of my profile according to http://rdos.net/eng/ You can click on the link above and complete a profile for yourself. I found it very interesting and many of the questions really made me think. It can take between 10-20 minutes I guess, so put the kettle on or pour yourself some wine before you started. Comment below to let me know how you get on. Continue reading How Neurodiverse are you? I know you’re curious…

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Looking forward with hope.

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So, people are writing a synopsis of their year. They are really lovely to see. Thank you for sharing. To be completely honest this year has probably been one of the worst ever, and anyone who knows me knows that’s saying something. There have been positives, the birth of my great nephew being the best. However most of the year has been an extremely difficult, lonely, anxious year involving learning about autism; battling schools, LAs, health service providers, peoples ignorance; caring for and protecting my family; hospital visits (only a couple for me!); meetings; not being listened to or taken … Continue reading Looking forward with hope.

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Let’s talk about the sensory overload which is children’s A&E (or the adult urgent care centre)

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I have had more than my fair share of visits to A&E in the past 4 weeks or so. I’ve averaged one a week. Four trips in four weeks. Two for my precious child and two for my dear husband. I’m already burning out but just about managing to keep my head above water. I have absolutely no reserves of energy or strength or anything else. I’m doing the bare minimum needed in my role as wife and mother. The house is clean enough, the family are fed (the odd takeaway won’t hurt too much), and the house hasn’t burnt … Continue reading Let’s talk about the sensory overload which is children’s A&E (or the adult urgent care centre)

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Why does the system wait until a child or young person is at breaking point before they listen to the child and the parents?

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Why does the system wait until a child or young person is at breaking point before they listen to the child and the parents? My daughter was literally begging the ‘so called’ crisis team to help her, to listen to her, to take away her pain. What they did instead was put her under immense pressure, talk over her, ignore her and (literally) walk away from her. Never before have I been so angry at a public service as I was that day. Never have I felt so out of control of the destiny of my family. Never have I … Continue reading Why does the system wait until a child or young person is at breaking point before they listen to the child and the parents?

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My whole life I’ve felt different, but was never sure why.

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My whole life I’ve felt different, but was never sure why. I always had deep questions running around in my head. Why am I me? Why was I born here at this moment in time? Why was I born to my parents within my family? What would happen if… Questions are essential for learning. What can you learn if no-one has an answer to your silent questions? #ActuallyAutistic #mentalhealth #questions Continue reading My whole life I’ve felt different, but was never sure why.